want info on the rare condition called ONH or SOD which causes blindness and problems with brain functions…?
my daughter was born with this condition and ive been told that the cause is unknown and there is no surgery or treatment that can make her see. Her optic nerve is damaged and that causes her brain to not produce the growth hormone and the hormone cortisol which calms humans down in traumatic situations (that's just one of it's functions). i've done countless searches on endocrinology websites and i cant seem to find any detailed info on this condition.
my daughter is now 10 months old and i have to inject her every night with the growth hormone and numerous other medications and my life no revolves around doctor appointments for her. im confused and just wish i knew more about what is going on with my daughter
if anyone knows someone who has this same condition or knows where i can find any info on it i would greatly appreciate it.
January 29th, 2011 - 00:12
Optic Nerve Hypoplasia, the under development of one or both Optic Nerves, was once considered rare but is now the leading cause of pediatric congenital vision loss in The United States of America. Septo Optic Dysplasia (formerly known as DeMorsier’s Syndrome) has been described as an individual having Optic Nerve Hypoplasia, Endocrine dysfunction (for example: Growth Hormone Deficiency) and/or absence of the Septum Pellucidum.
Please see the webpages (particularly wikibooks) for more details on Optic Nerve Hypoplasia and Septo Optic Dysplasia.
January 29th, 2011 - 00:12
wow, very sad, where expecting a baby in nov. and stories like this bum me out, never really was like this till i knew we were having one. try google, or ask.com or askgeeves.com..good luck..